{"id":20676,"date":"2025-05-01T10:15:39","date_gmt":"2025-05-01T14:15:39","guid":{"rendered":"https:\/\/ssaquebec.wp.vortexdev.com?p=20676"},"modified":"2025-05-07T08:14:02","modified_gmt":"2025-05-07T12:14:02","slug":"the-power-of-proms","status":"publish","type":"post","link":"https:\/\/ssaquebec.wp.vortexdev.com\/en\/news\/the-power-of-proms\/","title":{"rendered":"The power of PROMs: reporting your health results means taking part in your own treatment"},"content":{"rendered":"\n

This microsite is designed to raise awareness among oncology patients of the importance and usefulness of the outcomes they report to their healthcare team. This tool was developed by the Unit\u00e9 de soutien SSA Qu\u00e9bec’s Data to Knowledge scientific axis, and may be relevant in contexts other than oncology.<\/p>\n\n\n\n

We developed this microsite in response to concerns expressed by patients about PROMs following our e-IMPAQc study – essential tools for tailoring care to what matters to them, but still too little used. It aims to encourage their adoption by explaining their usefulness and impact in an accessible way. Clinicians can also use them to engage in dialogue with their patients and reinforce adherence to PROMs.<\/p>Sylvie Lambert, Associate Professor at McGill University and researcher at St. Mary’s Research Centre<\/cite><\/blockquote><\/figure>\n\n\n\n

What are PROMs?<\/h3>\n\n\n\n

PROMs are Patient Reported Outcome Measures.<\/p>\n\n\n\n

PROMs enable healthcare professionals to assess the physical, mental and emotional state of patients and their perspectives. This information is fundamental, because in order to provide patient-centred care, clinical staff need to understand the reality of these people. Only patients can provide this information.<\/p>\n\n\n\n

Patients have expressed concern about their ability to assess their symptoms or their health, and fear that they will respond poorly to PROMs’ questions. The good news is that there is no wrong way to answer. Honesty is key. Patients know their bodies best and are the experts on how they’re doing and what concerns them most.<\/p>\n\n\n\n

Patients and healthcare professionals team up<\/h3>\n\n\n\n

The aim of all parties is to get through the period associated with cancer treatment in the best possible health. PROMs are one of the best ways for healthcare professionals to assess symptoms and accompany patients towards their health goals.<\/p>\n\n\n\n

The research has shown that having patients involved in their care results in better care, better satisfaction, and better clinical outcomes, even in terms of survival in certain cases. So, there’s a real advantage for patients to be involved in their healthcare and to participate in PROMs. Their engagement in their care can actually make them feel better both physically and mentally. <\/em><\/p><\/blockquote><\/figure>\n\n\n\n

What does the tool contain?<\/h3>\n\n\n
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  • Patients as partners: Getting the most out of your cancer care<\/li>\n\n\n\n
  • The relevance and benefits of PROMs in your cancer care<\/li>\n\n\n\n
  • Myth busting: Don\u2019t believe everything you\u2019ve heard about PROMs<\/li>\n\n\n\n
  • How to use PROMs<\/li>\n\n\n\n
  • What to do when your healthcare team doesn\u2019t mention your PROMs results<\/li>\n\n\n\n
  • Why self-management is an important part of your cancer care<\/li>\n<\/ul>\n<\/div>\n\n\n

    Browse the microsite<\/h3>\n\n\n\n

    What you and your healthcare team know can make a difference!<\/p>\n\n\n

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