{"id":20127,"date":"2025-01-21T16:37:44","date_gmt":"2025-01-21T20:37:44","guid":{"rendered":"https:\/\/ssaquebec.wp.vortexdev.com?p=20127"},"modified":"2025-01-22T12:03:53","modified_gmt":"2025-01-22T16:03:53","slug":"best-practice-guidelines-for-engaging-people-with-lived-experience-in-mental-health-substance-use-health-research","status":"publish","type":"post","link":"https:\/\/ssaquebec.wp.vortexdev.com\/en\/news\/best-practice-guidelines-for-engaging-people-with-lived-experience-in-mental-health-substance-use-health-research\/","title":{"rendered":"Best Practice Guidelines for Engaging People with Lived Experience in Mental Health\/Substance Use Health Research"},"content":{"rendered":"\n<p>In 2024, the article &#8220;Best Practices Guidelines for the Engagement of People With Lived Experience and Family Members in Mental<br>Health and Substance Use Health Research: A Modified Delphi Consensus Study&#8221; was published. This article presents a summary.<\/p>\n\n\n<div class=\"block-accordion \">\n    <span class=\"block-accordion__label\">Accordion<\/span>\n    <h3 class=\"block-accordion__title\">Team<\/h3>\n    \n\n<p>Lisa D Hawke<sup>\u00a0<\/sup>,\u00a0Wuraola Dada-Phillips<sup>\u00a0<\/sup>,\u00a0Hajar Seiyad<sup>\u00a0<\/sup>,\u00a0Josh Orson<sup>\u00a0<\/sup>,\u00a0Lianne Goldsmith<sup>\u00a0<\/sup>,\u00a0Susan Conway<sup>\u00a0<\/sup>,\u00a0Adam Jordan<sup>\u00a0<\/sup>,\u00a0Natasha Y Sheikhan<sup>\u00a0<\/sup>,\u00a0Melissa Hiebert<sup>\u00a0<\/sup>,\u00a0Sean Kidd<sup>\u00a0<\/sup>,\u00a0Kerry Kuluski<sup>\u00a0<\/sup><\/p>\n\n\n\n<p>To cite the article:<\/p>\n\n\n\n<p> Hawke LD, Dada-Phillips W, Seiyad H, Orson J, Goldsmith L, Conway S, Jordan A, Sheikhan NY, Hiebert M, Kidd S, Kuluski K. Best Practices Guidelines for the Engagement of People With Lived Experience and Family Members in Mental Health and Substance Use Health Research: A Modified Delphi Consensus Study. Health Expect. 2025 Feb;28(1):e70152. doi: 10.1111\/hex.70152. PMID: 39832210.<\/p>\n\n\n\n<figure class=\"wp-block-pullquote\"><blockquote><p>Patient and public involvement: <br>People with lived experience were engaged throughout the project as key team members,<br>from a patient\u2010oriented research perspective. They are also co\u2010authors on this manuscript.<\/p><\/blockquote><\/figure>\n\n\n<\/div>\n\n                    \n\n\n\n<h3 class=\"wp-block-heading\">Context<\/h3>\n\n\n\n<p>People with lived experience of mental health and\/or substance use conditions and their families (PWLE) are increasingly engaged in research, yet rigorous guidelines for engagement are lacking. This study aims to co\u2010design best practice guidelines to support the authentic, meaningful engagement of PWLE in mental health and\/or substance use health research.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Methods<\/h3>\n\n\n\n<p>A multi\u2010panel modified Delphi study was conducted with 61 expert panelists (35 PWLE and family members, 26 researchers\/research support staff from across Canada). Participants rated 56 recommendations for importance and clarity. Consensus was defined as \u2265 70% of participants rating items at 6 or 7 on a 7\u2010point Likert scale (\u2018very important\u2019 or \u2018essential\u2019). Qualitative feedback was analysed using content analysis to identify new items and reviewed for improvements in item clarity. After each round, items not meeting the established threshold of importance were removed. Items with low clarity scores were reworded. A PWLE advisory panel was actively involved throughout the study&#8217;s design, implementation, interpretation, and reporting, ensuring that the perspectives of people with lived experience were integrated throughout the research process.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Results <\/h3>\n\n\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>Three Delphi Rounds were conducted.<\/li>\n\n\n\n<li>Forty\u2010four final best practices are proposed.<\/li>\n<\/ul>\n<\/div>\n\n\n<h3 class=\"wp-block-heading\">Conclusion<\/h3>\n\n\n\n<p>These co-developed best practice guidelines offer recommendations for meaningful PWLE engagement in mental health and\/or substance use health research. By following these guidelines, research teams can ensure that PWLE contributions are genuinely valued and effectively integrated, ultimately enhancing the quality and impact of the research and fostering authentic collaboration.<\/p>\n\n\n\n<div data-wp-interactive=\"core\/file\" class=\"wp-block-file\"><object data-wp-bind--hidden=\"!state.hasPdfPreview\" hidden class=\"wp-block-file__embed\" data=\"https:\/\/ssaquebec.wp.vortexdev.comwp-content\/uploads\/2025\/01\/Best-Practice-Guidelines-FINAL_Hawke.pdf\" type=\"application\/pdf\" style=\"width:100%;height:600px\" aria-label=\"Embed of Best Practice Guidelines FINAL_Hawke.\"><\/object><a id=\"wp-block-file--media-ede8a809-7a3e-4a5b-8423-a65d2197a9fa\" href=\"https:\/\/ssaquebec.wp.vortexdev.comwp-content\/uploads\/2025\/01\/Best-Practice-Guidelines-FINAL_Hawke.pdf\">Best Practice Guidelines FINAL_Hawke<\/a><a href=\"https:\/\/ssaquebec.wp.vortexdev.comwp-content\/uploads\/2025\/01\/Best-Practice-Guidelines-FINAL_Hawke.pdf\" class=\"wp-block-file__button wp-element-button\" download aria-describedby=\"wp-block-file--media-ede8a809-7a3e-4a5b-8423-a65d2197a9fa\">T\u00e9l\u00e9charger<\/a><\/div>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/39832210\/\" target=\"_blank\" rel=\"noreferrer noopener\">Read full article on PubMed<\/a><\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>By following these guidelines, research teams can ensure that people with lived experience of mental health and\/ or substance use and their families contributions are genuinely valued and effectively integrated, ultimately enhancing the quality and impact of the research and fostering authentic collaboration.<\/p>\n","protected":false},"author":2,"featured_media":20125,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"10895,17054,16159,16667,12872,12777","footnotes":""},"categories":[40],"tags":[],"article-type":[50,51],"class_list":["post-20127","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","article-type-publications-en","article-type-scientific-articles"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Best Practice 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