{"id":18907,"date":"2024-02-22T12:00:23","date_gmt":"2024-02-22T16:00:23","guid":{"rendered":"https:\/\/ssaquebec.wp.vortexdev.com?p=18907"},"modified":"2024-02-22T12:00:24","modified_gmt":"2024-02-22T16:00:24","slug":"patient-first-improving-the-trajectory-of-oncology-care-and-services-in-quebec","status":"publish","type":"post","link":"https:\/\/ssaquebec.wp.vortexdev.com\/en\/news\/patient-first-improving-the-trajectory-of-oncology-care-and-services-in-quebec\/","title":{"rendered":"Patient First: Improving the trajectory of oncology care and services in Qu\u00e9bec"},"content":{"rendered":"\n<p>Since 2020, this grant program has been offered by Oncopole, the cancer pole of the Fonds de recherche du Qu\u00e9bec &#8211; Sant\u00e9 (FRQS), and the Unit\u00e9 de soutien SSA du Qu\u00e9bec, with the collaboration of the Programme qu\u00e9b\u00e9cois de canc\u00e9rologie (PQC) of the Minist\u00e8re de la Sant\u00e9 et des Services sociaux (MSSS).<\/p>\n\n\n\n<p>It supports research projects aimed at providing better support for cancer patients and their families in Qu\u00e9bec. How can we do this? By improving their cancer care and services trajectory. The Patient First grant is unique in terms of patient partnerships, since the issues to be addressed by the teams were raised by Oncopole&#8217;s partner patient committee.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Issues raised by the Oncopole Patient Partners Committee<\/h3>\n\n\n\n<p class=\"has-small-font-size\">Free translation based on the\u00a0<a href=\"https:\/\/frq.gouv.qc.ca\/programme\/priorite-patient-prpt-pour-une-amelioration-de-la-trajectoire-de-soins-et-des-services-en-oncologie-au-quebec\/\">FRQS<\/a><\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Experience of care<\/h4>\n\n\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>Functional and economic impact of cancer and its treatment<\/li>\n\n\n\n<li>Information and self-management needs of patients<\/li>\n\n\n\n<li>Interventions to meet psychosocial needs<\/li>\n<\/ul>\n<\/div>\n\n\n<h4 class=\"wp-block-heading\">Effects and outcomes of care<\/h4>\n\n\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>Mechanisms of late and long-term effects and factors predictive of high risk<\/li>\n\n\n\n<li>Information needs of patients and their families<\/li>\n\n\n\n<li>Monitoring mechanisms to identify late effects and their repercussions<\/li>\n\n\n\n<li>Interventions to prevent and mitigate medical and psychosocial late effects<\/li>\n<\/ul>\n<\/div>\n\n\n<h4 class=\"wp-block-heading\">Organization of care<\/h4>\n\n\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>Interventions to improve the consistency, coordination and integration of follow-up care, including transitions between care levels<\/li>\n<\/ul>\n<\/div>\n\n\n<h4 class=\"wp-block-heading\">Cross-cutting themes<\/h4>\n\n\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>Involving patients and their families in research and decision-making processes concerning programs, policies or the care trajectory and its interactions with the healthcare system<\/li>\n\n\n\n<li>Improving strategies and mechanisms so that patients and their families can obtain reliable information<\/li>\n\n\n\n<li>Applying knowledge to communicate and deliver results in an understandable and relevant way<\/li>\n<\/ul>\n<\/div>\n\n\n<h3 class=\"wp-block-heading\">2018-2019 grant<\/h3>\n\n\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>4 MM<\/li>\n\n\n\n<li>Launched in February 2018 by the MSSS, the Graham Boeckh Foundation (FGB), the FRQ-S and the unit.<\/li>\n\n\n\n<li>Development and evaluation of pilot projects for mental and physical health services adapted to the needs of young people aged 12 to 25.<\/li>\n\n\n\n<li>The MSSS launches \u201cAire Ouverte\u201d initiative following competition<\/li>\n<\/ul>\n<\/div>\n\n\n<h3 class=\"wp-block-heading\">2022-2023 grant<\/h3>\n\n\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>4,7 MM over 5 years<\/li>\n\n\n\n<li>Launched in June 2022 by the MSSS, the Graham Boeckh Foundation (FGB), the FRQ-S and the unit<\/li>\n\n\n\n<li>Generating knowledge, supporting a culture of continuous improvement, enhancing the \u201cAire Ouverte\u201d initiative and making it part of a learning healthcare system<\/li>\n<\/ul>\n<\/div>\n\n\n<h3 class=\"wp-block-heading\">The Unit&#8217;s contribution<\/h3>\n\n\n\n<p>A number of resources are available to teams, notably through the Unit\u00e9 de soutien SSA Qu\u00e9bec, which can offer consultations tailored to the projects and needs of research teams in the following areas:<\/p>\n\n\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>Learning health systems<\/li>\n\n\n\n<li>Capacity building<\/li>\n\n\n\n<li>Data organization and management<\/li>\n\n\n\n<li>Patient\/public partnership<\/li>\n\n\n\n<li>Health economics<\/li>\n\n\n\n<li>Dta to knowledge<\/li>\n\n\n\n<li>Equity, diversity and inclusion<\/li>\n\n\n\n<li>Indigenous health<\/li>\n\n\n\n<li>PREMs (patient-reported experience measures) and PROMs (patient-reported outcome measures)<\/li>\n<\/ul>\n<\/div>\n\n\n<p><a href=\"https:\/\/frq.gouv.qc.ca\/preannonce-aire-ouverte-la-recherche-evaluative-en-soutien-a-une-amelioration-continue-des-services-offerts-aux-jeunes-du-quebec-et-a-des-organisations-apprenantes\/\" target=\"_blank\" rel=\"noreferrer noopener\">Learn more about the program (in french)<\/a><\/p>\n\n\n\n<p><a href=\"https:\/\/oncopole.ca\/en\/news\/announcement-of-patient-priority-competition-research-to-serve-patient-needs-in-oncology\/\">Announcing the winners of the Patient First 2022 edition<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The aim of Patient First is to provide better support for cancer patients and their families in Qu\u00e9bec. How can we do this? By improving their cancer care and services trajectory. This is a unique patient partnership project, since the issues to be addressed by the teams were raised by Oncopole&#8217;s partner patient committee.<\/p>\n","protected":false},"author":2,"featured_media":10838,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"10895,10832,12872,18633,10734,18620","footnotes":""},"categories":[40],"tags":[],"article-type":[49],"class_list":["post-18907","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","article-type-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Patient First: Improving the trajectory of oncology care and services in Qu\u00e9bec | Unit\u00e9 soutien SSA Qu\u00e9bec<\/title>\n<meta name=\"description\" content=\"Better support for cancer patients and their families. 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