{"id":10920,"date":"2021-08-31T13:59:39","date_gmt":"2021-08-31T17:59:39","guid":{"rendered":"https:\/\/ssaquebec.wp.vortexdev.comen\/news\/engage-participatory-methods-and-visual-and-auditory-tools-to-get-vulnerable-populations-involved-in-research\/"},"modified":"2023-07-10T14:27:07","modified_gmt":"2023-07-10T18:27:07","slug":"engage-participatory-methods-and-visual-and-auditory-tools-to-get-vulnerable-populations-involved-in-research","status":"publish","type":"post","link":"https:\/\/ssaquebec.wp.vortexdev.com\/en\/news\/engage-participatory-methods-and-visual-and-auditory-tools-to-get-vulnerable-populations-involved-in-research\/","title":{"rendered":"ENGAGE: participatory methods and visual and auditory tools to get vulnerable populations involved in research"},"content":{"rendered":"\n<h2 class=\"wp-block-heading\">The ENGAGE initiative: a collaboration with the Unit\u00e9 de soutien<\/h2>\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"360\" height=\"116\" src=\"https:\/\/ssaquebec.wp.vortexdev.com\/wp-content\/uploads\/2020\/06\/logo_engage.png\" alt=\"logo_engage\" class=\"wp-image-8931\" srcset=\"https:\/\/ssaquebec.wp.vortexdev.com\/wp-content\/uploads\/2020\/06\/logo_engage.png 360w, https:\/\/ssaquebec.wp.vortexdev.com\/wp-content\/uploads\/2020\/06\/logo_engage-300x97.png 300w\" sizes=\"auto, (max-width: 360px) 100vw, 360px\" \/><\/figure>\n\n<p class=\"wp-block-paragraph\">Between 2016 and 2020, three community-based literacy organizations involved in participatory research,\u00a0<strong>Le Tour de Lire<\/strong>,\u00a0<strong>Atout-Lire\u00a0<\/strong>and\u00a0<strong>La Jarnigoine<\/strong>, joined forces with researchers to create a community-engaged research partnership.\u00a0<strong>ENGAGE<\/strong>\u00a0was supported by experts in\u00a0<a href=\"https:\/\/unitesoutiensrapqc.ca\/composante\/developpements-methodologiques\/\" target=\"_blank\" rel=\"noreferrer noopener\">methodological development<\/a>\u00a0and\u00a0<a href=\"https:\/\/unitesoutiensrapqc.ca\/composante\/strategie-de-recherche\/\" target=\"_blank\" rel=\"noreferrer noopener\">public patient partnerships<\/a>\u00a0of the <strong>Unit\u00e9 de Soutien SRAP du Qu\u00e9bec<\/strong>\u00a0and the\u00a0<a href=\"https:\/\/www.usherbrooke.ca\/medecine\/\" target=\"_blank\" rel=\"noreferrer noopener\">faculty of medicine and health sciences of the Universit\u00e9 de Sherbrooke<\/a>. Dr.\u00a0Loignon is the science co-manager of the\u00a0<em>Patient-Public Partnership<\/em>\u00a0branch for RUISSS Sherbrooke. This branch is an integral part of the Patient-Public Partnership component of the Unit\u00e9 de soutien SRAP du Qu\u00e9bec.<\/p>\n\n<h2 class=\"wp-block-heading\">Social transformation for equity in research<\/h2>\n\n<h3 class=\"wp-block-heading\">What?<\/h3>\n\n<p class=\"wp-block-paragraph\">After reviewing the literature, creating a committee (three researchers, two fieldworkers and two students) and conducting interviews with researchers and organizations, a website was born.\u00a0<a href=\"https:\/\/engageplus.org\/fr\/\" target=\"_blank\" rel=\"noreferrer noopener\">engageplus.org\/<\/a><\/p>\n\n<p class=\"wp-block-paragraph\">This site<\/p>\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>A pour objectif de soutenir l\u2019engagement en recherche des personnes qui vivent de l\u2019exclusion sociale dans la soci\u00e9t\u00e9 et en recherche et r\u00e9duire les barri\u00e8res entre la recherche universitaire et les membres de la communaut\u00e9.<\/li>\n\n\n\n<li>Est une mine d\u2019informations qui peuvent permettent aux membres de la communaut\u00e9 et aux personnes oeuvrant en recherche de mieux saisir les fondements de la recherche participative.<\/li>\n\n\n\n<li>Propose des m\u00e9thodes visuelles qui peuvent favoriser la participation des populations qui sont souvent exclues des devis de recherche plus traditionnels.<\/li>\n<\/ul>\n<\/div>\n<h3 class=\"wp-block-heading\">Why?<\/h3>\n<div class=\"wp-block-list\">\n<ul class=\"wp-block-list\">\n<li>Outiller les citoyennes et citoyens ainsi que les patientes et patients ayant un faible niveau de litt\u00e9ratie de m\u00eame que les organisations diverses \u0153uvrant en sant\u00e9 qui souhaitent d\u00e9velopper leurs connaissances et les habilet\u00e9s en lien avec la recherche participative visuelle.<\/li>\n\n\n\n<li>Sensibiliser et outiller les chercheuses et chercheurs aux m\u00e9thodes d\u2019engagement en recherche adapt\u00e9es aux diff\u00e9rents types de populations pour favoriser l\u2019\u00e9quit\u00e9.<\/li>\n<\/ul>\n<\/div>\n<h3 class=\"wp-block-heading\">Who is it for?<\/h3>\n\n<p class=\"wp-block-paragraph\">Anyone who would like to get individuals with low literacy involved in research.<\/p>\n\n<p class=\"wp-block-paragraph\">This partnership aims to\u00a0<strong>support the research engagement of individuals and communities affected by social inequalities, precariousness or poverty, social exclusion, and low literacy to better anchor research in their needs and realities.<\/strong><\/p>\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\">Ce site est n\u00e9 d\u2019une volont\u00e9, de mettre \u00e0 la disposition aux chercheuses et chercheurs de la sant\u00e9 des outils qui viendront les aider \u00e0 impliquer des personnes et des communaut\u00e9s qui sont\u00a0<em>silencieuses<\/em>\u00a0ou faiblement repr\u00e9sent\u00e9es dans les devis de recherche traditionnels.<\/p>\n<\/blockquote>\n\n<div style=\"height:25px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p class=\"wp-block-paragraph\">The team behind ENGAGE observed that such people are underrepresented or sometimes instrumentalized in traditional study designs and patient-oriented research. As such, they co-developed an easy-to-access tool that offers approaches, methods, resources and tools to encourage their active participation in research.<\/p>\n\n<h2 class=\"wp-block-heading\">Innovative participatory and visual methods.<\/h2>\n\n<p class=\"wp-block-paragraph\"><strong>More specifically, the ENGAGE website was designed for anyone who is interested in using visual methods to encourage engagement in participatory research.<\/strong>\u00a0It is designed to equip members of the public, patients with low literacy, and various health organizations with knowledge and skills related to\u00a0<strong>participatory and visual research.<\/strong><\/p>\n\n<p class=\"wp-block-paragraph\">Participatory and visual methods are part of an emerging, innovative research methodology that promotes partner participation. These methods offer several advantages that are described in detail on the website, such as helping individuals communicate and reflect on subjects that are sensitive or difficult to put into words. They also provide pespective on aspects of participants\u2019 daily lives that may not be effectively revealed through other research methods (as these may require higher levels of literacy).<\/p>\n\n<h2 class=\"wp-block-heading\">A co-building exercise<\/h2>\n\n<p class=\"wp-block-paragraph\">In the development of the project and co-creation of the website, various preliminary steps were completed before the tool went live. To start, we established a working committee consisting of researchers, fieldworkers and students. We then completed a literature review on the use of visual methods with at-risk populations and individuals with low literacy. We reviewed similar websites and interviewed various stakeholders (patients, researchers and community group social workers) to collect their perspectives on issues in participatory research (in particular, the various existing participatory methods), on their contents, presentation, and dissemination methods for this digital platform.<\/p>\n\n<p class=\"wp-block-paragraph\">After two years of confronting the challenges this type of co-building project entails (communications issues, availability, sharing of expertise, etc.) the ENGAGE digital platform went live in winter 2020. An article was published on the co-building of the project on <a href=\"https:\/\/researchinvolvement.biomedcentral.com\/articles\/10.1186\/s40900-021-00313-x\" target=\"_blank\" rel=\"noreferrer noopener\">BioMed Central<\/a>.<\/p>\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.engageplus.org\/en\/\" target=\"_blank\" rel=\"noreferrer noopener\">Visit the ENGAGE website<\/a><\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>How can you get vulnerable people and those with low literacy levels involved in health research? How can you reduce barriers between university researchers and members of the community? Co-built by community-based organizations and members of the Canadian and international research communities, ENGAGE is a bilingual website offering participatory methods, as well as visual and auditory tools.<\/p>\n","protected":false},"author":2,"featured_media":10530,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"10895,10796,10737,10807,10746,10817","footnotes":""},"categories":[40],"tags":[103,114,113],"article-type":[47,48],"class_list":["post-10920","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-edi-en","tag-low-literacy","tag-partnership","article-type-deliverables","article-type-tools"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ENGAGE: participatory methods and visual and auditory tools to get vulnerable populations involved in research | Unit\u00e9 soutien SSA Qu\u00e9bec<\/title>\n<meta name=\"description\" content=\"How can you get vulnerable people and those with low literacy levels involved in health research? 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