{"id":10867,"date":"2021-08-31T13:50:57","date_gmt":"2021-08-31T17:50:57","guid":{"rendered":"https:\/\/ssaquebec.wp.vortexdev.comen\/news\/claret\/"},"modified":"2023-07-10T14:27:04","modified_gmt":"2023-07-10T18:27:04","slug":"claret","status":"publish","type":"post","link":"https:\/\/ssaquebec.wp.vortexdev.com\/en\/news\/claret\/","title":{"rendered":"CLARET"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">CLARET is a project that studies ways to implement\u00a0<strong>meta-consent<\/strong>, allowing patients to provide access to their health data. CLARET studies informed consent on several research projects at the same time and how often patients should receive invitations to provide consent.Using surveys and focus groups consisting of people from all levels of society, the CLARET project studies the implementation of the meta consent approach.<\/p>\n\n<p class=\"wp-block-paragraph\"><strong>The Minist\u00e8re de la Sant\u00e9 et des Services sociaux du Qu\u00e9bec (MSSS) mandated the Unit<\/strong>\u00a0to define and validate the parameters required to establish a transparency portal for citizens that would facilitate transparency, acceptability and access to health data for research purposes.<\/p>\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/ssaquebec.wp.vortexdev.com\/en\/news\/projet-claret-sur-le-meta-consentement-a-lutilisation-de-donnees-de-sante-en-recherche-les-premiers-resultats\/\" target=\"_blank\" rel=\"noreferrer noopener\">Learn more<\/a><\/div>\n<\/div>\n\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><a href=\"https:\/\/ssaquebec.wp.vortexdev.com\/nouvelles\/ca-vous-va-si-on-reutilise-vos-donnees-de-sante-une-bande-dessinee-eclairante-sur-le-partage-des-donnees-de-sante\/\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"604\" src=\"https:\/\/ssaquebec.wp.vortexdev.com\/wp-content\/uploads\/2022\/07\/bd_CLARET-1024x604.jpg\" alt=\"bd_CLARET\" class=\"wp-image-14619 size-full\"\/><\/a><\/figure><div class=\"wp-block-media-text__content\">\n<h4 class=\"wp-block-heading\">An enlightening comic book about sharing your health data<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Why do research teams and medical staff want access to health data? How can consent to share health data be made possible in a secure, transparent, acceptable and accessible context? Dominique Wolfshagen&#8217;s cartoon explains it very well!<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/ssaquebec.wp.vortexdev.com\/en\/news\/ca-vous-va-si-on-reutilise-vos-donnees-de-sante-une-bande-dessinee-eclairante-sur-le-partage-des-donnees-de-sante\/\">See the comic book (in French)<\/a><\/div>\n<\/div>\n<\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Transparency- and consent-driven ethical framework designed to share research data.<\/p>\n","protected":false},"author":2,"featured_media":10808,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"10807,10728,10414,10400,10702,10871","footnotes":""},"categories":[40],"tags":[],"article-type":[47,48],"class_list":["post-10867","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","article-type-deliverables","article-type-tools"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>CLARET | Unit\u00e9 soutien SSA 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